Thursday, June 21, 2012

Informed Consent & Use of Information for Other Purposes

A recent article in Nature by Ericka  Check Hayden talks about some of the problems that can come up in the informed consent process when participants in research don't feel very informed by the process. In an age where data about individuals is getting gathered and used on am much larger basis,  participants in research and the researchers themselves are often not entirely clear about how data may be used in the future, or if this data will remain protected. With all this confusion, some people are less willing to participate in research than they used to be, and researchers often feel confused about how they should approach this issue.

So what should we do? The article discusses some better potential models for consent, including the potential for new technology that will allow participants to control and track how their data is used.

Let us know what you think! How can the informed consent process catch up to the reality of research today?

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